NORD and 13 patient organizations submit comments on Florida’s Section 1115 waiver application
Published: Oct 19, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 13 patient organizations submit comments on Florida’s Section 1115 waiver application
Published: Oct 19, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and nine other patient organizations submit a letter of support to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council
Published: May 28, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD letter to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council
Published: May 6, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 11 other patient organizations submit a letter of support to the Florida Speaker of the House in support of House Bill 1373 to establish an RDAC
Published: Apr 16, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and Rare Action Network Volunteers submit written testimony to the Florida House Professions and Public Health Subcommittee in support of House Bill 1373 to establish an RDAC
Published: Mar 22, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
