NORD submits written testimony to the GA House Health and Human Services Committee in support of House Bill 918 to establish a Rare Disease Advisory Council
Published: Feb 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits written testimony to the GA House Health and Human Services Committee in support of House Bill 918 to establish a Rare Disease Advisory Council
Published: Feb 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 19 other patient organizations submit a letter to the GA House Health and Human Services Committee urging them to support the creation of a Rare Disease Advisory Council
Published: Feb 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 19 other patient organizations submit comments to the federal government regarding the harmful Georgia Access Model 1332 waiver
Published: Jan 7, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
Coalition statement on the approval of Georgia’s 1115 waiver and pending approval of the state’s 1332 waiver, which reduce access to comprehensive health insurance for patients.
Published: Oct 16, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers, Section 1332 Waivers
Coalition comments to the Department of Health and Human Services and Department of the Treasury regarding Georgia’s 1332 waiver application.
Published: Sep 18, 2020
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
