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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

Coalition letter to the Governor of Kansas expressing concerns over a “Toolkit for COVID-19” issued by the Department of Health that could discriminate against older Americans and those the pre-existing conditions

Published: Apr 16, 2020
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