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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

NORD and Rare Action Network Volunteer Ambassador testimony to the Maine Joint Health and Human Services Committee with suggested amendments in support of Legislative Document 972 to establish an RDAC

Published: Apr 7, 2021
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