NORD and eight coalition partners send comments to the federal government in support of Maine’s proposed 1332 reinsurance waiver
Published: Apr 26, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and eight coalition partners send comments to the federal government in support of Maine’s proposed 1332 reinsurance waiver
Published: Apr 26, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
NORD and 14 other patient organizations submit a letter to the ME Appropriations & Financial Affairs Committee in support of LD 972 to establish a Rare Disease Advisory Council
Published: Mar 22, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits letter of support to the ME Committee on Appropriations and Financial Affairs in support of Legislative Document 972, Rare Disease Advisory Council legislation
Published: Feb 3, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD submits letter of support to the ME Committee on Appropriations and Financial Affairs in support of Legislative Document 972, Rare Disease Advisory Council legislation
Published: Jun 28, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and Rare Action Network Volunteer Ambassador testimony to the Maine Joint Health and Human Services Committee with suggested amendments in support of Legislative Document 972 to establish an RDAC
Published: Apr 7, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
