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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

Coalition comments to CMS in support of New Hampshire’s efforts to establish a reinsurance program

Published: Jun 12, 2020

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Coalition letter to New Hampshire Governor Sununu requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency

Published: May 7, 2020
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