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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

NORD and 23 patient organizations send letter to members of the Ohio Senate urging the rapid passage of HB 122

Published: Nov 3, 2021
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NORD testimony to the Ohio Senate Health Committee in support of House Bill 122 that would would make permanent provisions related to telehealth

Published: Sep 29, 2021
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