Scroll
To Top

Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

Filter Statements

  • Filter by Year

  • Filter by Type

  • Filter by Category

Latest Policy Statements

NORD, Hemophilia of SC and 11 other patient organizations submit a letter of support to the South Carolina House Medical, Military, Public, and Municipal Affairs Committee in support of House Bill 3956 to establish an RDAC

Published: Apr 12, 2021
Tagged in:

Read full statement >

NORD, Hemophilia of SC and 11 other patient organizations submit testimony to the South Carolina House Subcommittee I, Health and Environmental Affairs in support of House Bill 3956 to establish an RDAC

Published: Mar 15, 2021
Tagged in:

Read full statement >