For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD, Hemophilia of SC and 11 other patient organizations submit a letter of support to the South Carolina House Medical, Military, Public, and Municipal Affairs Committee in support of House Bill 3956 to establish an RDAC
Published: Apr 12, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and Rare Action Network Volunteer Ambassador testimony to the South Carolina House Subcommittee I, Health and Environmental Affairs in support of House Bill 3956 to establish an RDAC
Published: Mar 15, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD, Hemophilia of SC and 11 other patient organizations submit testimony to the South Carolina House Subcommittee I, Health and Environmental Affairs in support of House Bill 3956 to establish an RDAC
Published: Mar 15, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD, Hemohilia of SC and several other patient organizations submit a letter of support to Chairman Howard on H3956, to establish a Rare Disease Advisory Council in South Carolina
Published: Mar 8, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
Coalition statement voicing strong opposition to CMS’ decision to allow a state that has not expanded Medicaid, South Carolina, to implement a work requirement
Published: Dec 12, 2019
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
