NORD and 23 organizations release statement on Kelley v Beccerra case that threatens preventative services
Published: Jul 22, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 23 organizations release statement on Kelley v Beccerra case that threatens preventative services
Published: Jul 22, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD and seventeen coalition partners submit comments on the Texas Healthcare Transformation and Quality Improvement Program – Extension Request Demonstration
Published: Aug 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and seventeen coalition partners submit letter on the importance of Medicaid expansion in response to Texas’s proposed 1115 waiver
Published: Jun 25, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and several patient organizations ask Texas State Representative Capriglione for support to establish a Rare Disease Advisory Council (RDAC)
Published: Mar 18, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and several patient organizations ask Texas State Senator Kolkhorst for support to establish a Rare Disease Advisory Council (RDAC)
Published: Mar 11, 2021
Tagged in: Rare Disease Advisory Councils (RDACs)
