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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Latest Policy Statements

NORD led coalition comments to Utah legislative leadership in support of the Utah Rare Disease Advisory Council

Published: Jun 15, 2020

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NORD comments to the Utah Department of Health in support of the state’s Section 1115 Demonstration Amendment to increase the premium reimbursement amount for Utah’s Premium Partnership for Health Insurance (UPP) program

Published: Jun 17, 2020

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