Scroll
To Top

Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

Filter Statements

  • Filter by Year

  • Filter by Type

  • Filter by Category

Latest Policy Statements

NORD, along with the ALS Association, the Alliance for Connected Care and 235 other patient organizations call on governors to protect access to telehealth

Published: Oct 28, 2021
Tagged in:

Read full statement >