For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition letter from over 200 patient organizations imploring Congress to maintain the Orphan Drug Tax Credit **Updated letter as of November 10**
Published: Nov 8, 2017
Tagged in: Access to Innovative Medicines and Therapies, Orphan Drug Tax Credit
NORD comments to the Centers for Medicare & Medicaid Services (CMS) regarding the “14-Day Rule”
Published: Sep 11, 2017
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Oregon coalition letter regarding out-of-pocket costs
Published: May 17, 2017
Tagged in: Access to Affordable, Adequate Coverage, Out of Pocket Prescription Drug Costs
NORD letter in support of Nevada Assembly Bill 245, an act calling for prescriber communication with regard to biosimilars
Published: Mar 20, 2017
Tagged in: Biosimilars, Access to Affordable Medicines
Coalition letter to President Trump regarding vaccine safety
Published: Feb 7, 2017
Tagged in: Access to Innovative Medicines and Therapies
