For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition letter asking Congress to continue supporting the medical expense deduction
Published: Sep 5, 2018
Tagged in: Advancing Rare Disease Research and Regulatory Science
Coalition letter to Secretary Azar regarding Medicare Part D’s protected classes policy
Published: Apr 9, 2018
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage