For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Stakeholder letter endorsing the Accelerating Kids Access to Care Act, to improve access to out-of-state providers for children with complex medical conditions in Medicaid.
Medicare Part D Open Enrollment guide from the MAPRx Coalition
Published: Oct 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition statement on the approval of Georgia’s 1115 waiver and pending approval of the state’s 1332 waiver, which reduce access to comprehensive health insurance for patients.