Project RDAC Resources & Materials
A Rare Disease Advisory Council (RDAC) provides a platform for the local rare disease community to have a stronger voice in state government. NORD’s Project RDAC resources and materials are here to support each step of an RDAC’s journey:
- Learn More & Get Started
- Legislative Advocacy
- RDAC Implementation
Learn More & Get Started
Looking for an overview of Project RDAC? Looking to start an RDAC in your state? NORD wants to work with YOU to establish well-organized, high-functioning RDACs in every state. Let’s get started!
Toolkit: Creating an RDAC in Your State
*Requires form submission to access
Webinar Recording: Create a Rare Disease Advisory Council in Your State
Recorded: January 13, 2021
Legislative Advocacy
Make your voice heard! Work with NORD and your community to influence the introduction, enactment, or modification of RDAC legislation. Here’s how!
Toolkit: Advocating for a Rare Disease Advisory Council in Your State
*Requires form submission to access
Webinar Recording: Advocating for a Rare Disease Advisory Council in your State
Recorded: March 4, 2021
RDAC Implementation
Help an RDAC have a positive impact on the rare disease community! Build on your advocacy by helping to create a strong RDAC that effectively works to elevate the voice of the rare community. Get involved!
Recording: RDAC Stakeholders Meeting
Recorded: December 16, 2020
Toolkit: Implementing a Rare Disease Advisory Council in Your State
*Requires form submission to access
Webinar Recording: Your State Just Enacted an RDAC – Now What?
Recorded: June 10, 2021