Events take place across the country in recognition of Rare Disease Day each year! You can get involved by attending or hosting your own event. How will you be spending the day or days leading up to Rare Disease Day? Tell the world! Find an event to attend listed here. If your event is not already listed, fill out this form so we can share it broadly on this website and through social media!
Outside of the United States, hundreds of events take place in honor of Rare Disease Day around the world! Our sister organization and founder of Rare Disease Day, EURORDIS, lists events taking place internationally.
Interested in hosting an event in your state? Submit your own event now. Want to get involved but don’t know where to start? View some suggestions.
Hosting a Rare Disease Day event in your hospital, school, community, or even virtually is a great way to commemorate the day and raise awareness for rare diseases. Use the resources below to help you plan the awareness event that you are imagining.
Whether it’s a lobby tabling event or something more elaborate, recognizing Rare Disease Day in your hospital or medical center makes an important statement about commitment to rare disease patients. Read about what others have done and download helpful resources here.
Students organize Rare Disease Day events in schools and universities across the U.S. and NORD is happy to help with suggestions, resources and – when possible – speakers. Campus events promote awareness and provide an important learning opportunity for students preparing for health-related careers. Events within grade schools help children and adolescents understand the challenges of those impacted by rare diseases at an early change and create a better sense of understanding.
Anyone can host a live event within their local community to raise awareness and participate in Rare Disease Day! The possibilities are endless and so we have developed resources to help you brainstorm event ideas and resources to then help you plan those events.
Rare Disease Day Events are not limited to in-person events and may take place online! These virtual events are a wonderful way to be include those who may be unable to leave their homes or their places of work on the day. Ideas for different types of Rare Disease Day events are listed below. In order to host a successful virtual event, online promotion is critical. Make sure to take a look at our 2019 social media toolkit for promotion tips.
Please join Firefly Fund for a virtual Run for Rare kicking off on World Rare Disease Day, Sunday, Feb. 28, and culminating on March 26, to raise awareness of rare diseases, including Niemann Pick Disease Type C1 (NPC). The goal of this event is to accelerate a cure for rare neurodegenerative genetic diseases that affect children and currently have no cure. Over the next month, we want to see you running (or walking) to show your support for NPC. Share…
Find out more »Rare Disease Day at NIH will be held virtually on Monday, March 1, 2021, from 10:30 am to 5:30 pm ET. This year’s event will feature interactive panel discussions, rare stories through TED-style talks and more. The event is free and open to the public, including patients, patient advocates, health care providers, researchers, industry representatives and government employees. Be sure to follow the event on social media using #RDDNIH.
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Penn Medicine's Orphan Disease Center and the Coriell Institute for Medical Research have teamed up for a virtual event celebrating the patients that inspire the scientists conducting research into these diseases. Speakers include: Anne T. Berg, PhD Feinberg School of Medicine - Northwestern University Terry Jo Bichell, PhD, MPH COMBINEDbrain Scott Demarest, MD Health Outcomes Research and Delivery Science Eric Marsh, MD, PhD Orphan Disease Center - Penn Medicine Matthew W. Mitchell, PhD Coriell Institute for Medical Research
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Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Utah legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Utah Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.
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New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate New Jersey legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where New Jersey is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC…
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A Genetics Pop-up is a small gathering online, spearheaded by a genetic ambassador, to share genetic resources with families and those who work with families impacted by genetic conditions. A Genetics Pop-Up provides a safe space for individuals and families to ask questions about genetics and get connected to resources that can help answer those questions. Date: 3/4/21 Time: 5pm Pacific Time/ 6pm Mountain Time/ 7pm Central Time/ 8pm Eastern Time Register HERE: https://bit.ly/3polI17
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A Genetics Pop-up is a small gathering online, spearheaded by a genetic ambassador, to share genetic resources with families and those who work with families impacted by genetic conditions. A Genetics Pop-Up provides a safe space for individuals and families to ask questions about genetics and get connected to resources that can help answer those questions. Date: 3/4/21 Time: 7pm Pacific Time/ 8pm Mountain Time/ 9pm Central Time/ 10pm Eastern Time Register HERE: https://bit.ly/3qRTvjG
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Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of rare disease day! This online event will showcase a series of 5 talks given by patients, clinicians, researchers and leaders of various organizations, along with prizes to win! - More info can be found on the Facebook event page: https://www.facebook.com/events/870037866872459 - Sign up for FREE here: https://mcgill.zoom.us/meeting/register/tZAlf--spj4oHd2YtcqWcoxZJaZI_-G_2BYa
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2020 World Pediatrics Conference (2020WPC) will be focusing on the latest advancements and innovations in different fields of Pediatrics research. 2020WPC is a premiere educational Pediatrics Congress in the field of Child Care and Neonatology that rotate between continents and are organized in collaboration with few national and international pediatric societies and associations. This International Pediatrics Congress 2020WPC is going to be held at Bangkok, Thailand during March 19-20, 2021 around the theme ‘Current Challenges in Delivering Pediatric and Neonatal…
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2nd Advanced Chemistry World Congress to be held on June 14-15, 2021 in Berlin, Germany is an event for researchers, academicians, students and delegates from industries/companies to present their work and provide an important channel for exchange of information. Advanced Chemistry 2021 aims at bringing members from all around the world to a common platform to share their experiences, new ideas, and research findings on all aspects of Chemistry. This Chemistry conferences will have a variety of Plenary Lectures, session…
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