Events take place across the country in recognition of Rare Disease Day each year! You can get involved by attending or hosting your own event. How will you be spending the day or days leading up to Rare Disease Day? Tell the world! Find an event to attend listed here. If your event is not already listed, fill out this form so we can share it broadly on this website and through social media!
Download Code of Conduct
Outside of the United States, hundreds of events take place in honor of Rare Disease Day around the world! Our sister organization and founder of Rare Disease Day, EURORDIS, lists events taking place internationally.
Interested in hosting an event in your state? Submit your own event now. Want to get involved but don’t know where to start? View some suggestions.
TELL US WHAT YOU'RE DOING…POST YOUR EVENT
Are you hosting an event this year for Rare Disease Day? Submit it for publication on this website here in order to reach more people and show the impact of everyone’s efforts across the U.S.! Events submitted must be in the United States and can include, but are not limited to: a company’s lunch-and-learn for its employees, a patient organization’s community awareness event, a research symposium, a concert, a school program, a media event, and more. Rare Disease Day is a grassroots effort and we want to hear how you’re participating. This is a day for every member of the rare disease community – patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.
Post Your Event Now »