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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Adams Oliver Syndrome Support Group

a/k/a: AOS

Address

14 College View
Connah's Quay
Deeside, CH5 4BY
United Kingdom

Phone

012-448-16209

Fax

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800 Number

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TDD

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Email Address

sandy.ivins@btinternet.com

Website

http://www.aosupport.org/

The Adams Oliver Syndrome Support Group (AOS) is an organization that works to create and enhance public awareness about Adams Oliver syndrome, a rare genetic disorder characterized by distinctive malformations of the scalp and abnormalities of the fingers, toes, arms, and/or legs. The group provides an information packet on this inherited disorder and is working to build a network of people who can discuss common problems and concerns that arise for affected individuals, families, friends, and caregivers.

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