You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Family Voices, Inc.

a/k/a: FV

Address

3701 San Mateo Blvd NE
Suite 103
Albuquerque, NM 87110
USA

Phone

505-872-4774

Fax

505-872-4780

800 Number

888-835-5669

TDD

--

Email Address

kidshealth@familyvoices.org

Chapters

50

Website

http://www.familyvoices.org

The Family Voices (FV) is a non-profit, voluntary organization dedicated to ensuring that children's health issues are addressed as public and private healthcare systems undergo change in communities, states, and the nation. Established in 1995, Family Voices, which currently consists of over 40,000 members and 50 chapters, is a national grassroots clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions. Family Voices is dedicated to the principle that every child deserves quality primary and specialty health care that is affordable and within geographic reach, as well as that families are the core of this nation's health system, functioning as their children's most important health providers and caregivers. Family Voices encourages and provides support to families who want to play a role in their child's health care whether in a clinic, hospital, boardroom, agency, office, or legislative hearing. The organization also encourages partnerships between families and their child's health practitioner, policy makers, the media, and other advocates who also care about children.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.