The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Center for Narcolepsy, Sleep and Health Research
College of Nursing, Suite 215
University of Illinois at Chicago
Chicago, IL 60612
The Center for Narcolepsy, Sleep and Health Research (CNSHR) at the College of Nursing (University of Illinois at Chicago [UIC]) was established in 1986 to help increase knowledge and awareness of narcolepsy and to provide information and support to those affected by this disorder. Narcolepsy is characterized by abnormal drowsiness during the day, sudden extreme muscle weakness (cataplexy), hallucinations, paralysis while sleeping, and/or disrupted sleep during the night. The development and severity of symptoms vary greatly among affected individuals. The CNSHR staff, along with faculty and graduate students from UIC, collaborates in conducting various studies. Networking activities are undertaken with other sleep researchers and clinicians at sleep disorder centers throughout the Chicago metropolitan region. Ongoing investigations are being conducted into areas such as memory and the speed of cognitive processing, the prevalence of sleep pattern disturbance among adolescents, and appropriate symptom management. Research activities also include the measurement of bio-behavioral aspects of excessive daytime sleepiness; the study of how narcolepsy symptoms develop and appropriate management techniques; the enhancement of coping skills for people with narcolepsy and their families; the study of learning, memory, and cognitive processing of people with narcolepsy; and the investigation of new methods of treatment for narcolepsy. Clinical work includes counseling and educational activities for people with narcolepsy. The Center's staff works closely with the Midwest Narcolepsy Support Group (MSNG), an independently run support group for people with narcolepsy and their friends or family members. The Center also seeks to educate health care professionals about narcolepsy and other disorders of excessive sleepiness. The CNSHR maintains a patient registry of several hundred research volunteers. This registry may serve as a model for research into other chronic neurological disorders. The Center fields questions from physicians, teachers, and nurses on current scientific knowledge about sleep disorders.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.