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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Tuberous Sclerosis Canada Sclerose Tubereuse

a/k/a: TSCST

Address

92 Caplan Ave
Suite 125
Canada

Phone

--

Fax

--

800 Number

888-223-2410

TDD

--

Email Address

raymarco@shaw.ca

Website

http://www.tscanada.ca

The Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST) is a non-profit organization dedicated to raising public awareness of tuberous sclerosis complex (TSC); encouraging mutual support between families affected by TSC and promoting research and education. TSC is a congenital disease characterized by certain skin abnormalities and birthmarks, tuber-like growths in the eyes, the brain, heart, kidneys, and other internal organs, and varying severity of epilepsy and mental retardation. Established in 1990, TSC facilitates a self-help network in which families affected by tuberous sclerosis support one another by telephone and share information about local services that may be available. Educational materials are available in French and English.

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