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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Hemimegalencephaly Family Support Network

a/k/a: HME Support Group

Address

18 Oak Street
Shepparton
Victoria, 3630
Australia

Phone

035-822-2797

Fax

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800 Number

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TDD

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Email Address

hmegroup@cv.quik.com.au

Website

http://www.hemimegalencephaly.com/

The Hemimegalencephaly (HME) Support Group is an international parent support group based in Australia. The HME Support Group is dedicated to offering help, support, and information to parents and other family members of children affected by hemimegalencephaly, a rare brain malformation characterized by enlargement of one of the cerebral hemispheres. Associated symptoms often include early, frequent seizures that are often difficult to control and variable developmental delays. The HME Support Group works to fulfill its mission through offering information and mutual support, visiting affected families when possible, and maintaining a web site on the Internet. The organization's web site provides understandable information on hemimegalencephaly, promotes networking among affected families via e-mail, and has a guest book area for online visitors.

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