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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Lesch-Nyhan Disease International Study Group

Address

210 South Green Bay Road
Lake Forest, IL 60045

Phone

847-234-3154

Fax

847-234-3136

800 Number

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TDD

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Website

http://www.lesch-nyhan.org

The lesch-nyhan disease international study group is a web site is managed by several individuals with special expertise in lesch-nyhan disease. This site is designed to educate patients, family members, caretakers, physicians and researchers about this disease, including diagnosis and treatment. Lesch-nyhan disease is a rare condition that affects children at a very young age. Children born with this disease are almost always male, and their symptoms may include kidney stones, loss of muscle control, and an irresistible urge to try to hurt themselves.

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