You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Adult Congenital Heart Association

a/k/a: ACHA

Address

6757 Greene Street, Suite 335
Philadelphia, PA 19119-3508
USA

Phone

215-849-1260

Fax

215-849-1261

800 Number

888-921-2242

TDD

--

Email Address

info@achaheart.org, advocacy@achaheart.org

Website

http://www.achaheart.org/

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community. Their website, print materials, media outreach, educational events and advocacy events allow us to reach out to adults with CHD and advocate for the ACHD community. ACHA offers information directly to patients and families, and provides materials and services through health-professional members.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.