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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Canavan Research Foundation

a/k/a: CRF

Address

88 Rt. 37
New Fairfield, CT 06812

Phone

203-746-2436

Fax

203-746-3205

800 Number

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TDD

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Email Address

info@canavan.org

Website

http://www.canavan.org

The Canavan Research Foundation (CRF) supports research seeking treatment or a cure for Canavan disease. Current research projects include gene therapy, stem cell therapy and metabolic approaches. Clinical trials have been ongoing in gene therapy at Robert Wood Johnson Hospital in New Jersey. Family support is also provided through an active web board and educational outreach. The foundation relies principally on private funding, and virtually all-funding goes directly toward research.

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