You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Oto Palatal Digital Syndrome Family Resource Network

a/k/a: OPD

Address

9559 Woodridge Circle
Eden Prairie, MN 55347

Phone

952-947-9936

Fax

--

800 Number

--

TDD

--

Email Address

info@opdsyndrome.org

Website

http://opdsyndrome.org/index.html

The Oto-Palatal-Digital Syndrome Family Resource Network was formed to provide patients afflicted with this rare genetic disorder and their family members with information, resources and support. Oto-palatal-digital syndrome presents with various findings that may include cleft palate, a downward slant of the opening between the upper and lower eyelids, hearing loss, and short fingers and toes.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.