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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

World Arnold Chiari Malformation Association

a/k/a: WACMA


31 Newtown Woods Road
Newtown Square, PA 19073



Email Address


The World Arnold Chiari Malformation Association (WACMA) is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. Arnold-Chiari malformation is a rare malformation of the brain that is present at birth and results in a broad range of symptoms. Syringomyelia is a neurological disorder characterized by a fluid-filled cavity within the spinal cord that, for unknown reasons, often expands during adolescence or the young adult years. Established in 1996, the WACMA seeks to raise awareness of these disorders, and their impact on the lives of those who are affected, among the medical community. With help from its members, the WACMA hopes to be able to further research into the symptoms, diagnosis, treatment, and outcomes related to Arnold Chiari malformation and syringomyelia.

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