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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pelizaeus Merzbacher Disease Support Group

a/k/a: PMD Support UK

Address

43 Fir Tree Close
Flitwick
Bedfordshire, MK45 1NY
United Kingdom

Phone

015-257-16907

Email Address

pmdsupport@dsl.pipex.com

Website

http://www.patient.co.uk/showdoc.asp?doc=26739559

The Pelizaeus Merzbacher Disease Support Group is for families within the United Kingdom affected by Pelizaeus Merzbacher disease, sometimes called Pelizaeus Merzbacher brain sclerosis or PMD. This is a rare inherited disease that affects the central nervous system and is associated with abnormalities of the white matter of the brain. Symptoms may include impaired ability to coordinate movement, developmental delay, involuntary muscle spasms, and progressive deterioration of intellectual function. The group is a support group for families that provides a quarterly newsletter with family updates. It focuses on families rather than on professionals.

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