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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Ohdo Syndrome Family Network

a/k/a: OSFN

Address

36 Borrowdale Ave
Gatley
Cheshire, SK8 4QF
United Kingdom

Phone

016-142-88583

Email Address

patseville@btinternet.com

Website

http://uk.groups.yahoo.com/group/ohdosyndrome/?tab=s

The Ohdo Syndrome Family Network is a voluntary health organization located in the UK providing information to patients and their families, healthcare professionals, and the public. Ohdo syndrome, also known as Ohdo blepharophimosis syndrome, is characterized by learning difficulties in conjunction with congenital heart disease, small eye openings (blepharophimosis), drooping eyelids (blepharoptosis), and small teeth. The Ohdo Syndrome Family Network provides support and networking opportunities to parents of affected children. It also seeks to enhance awareness of this syndrome among medical professionals.

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