You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Association for Parents of Children with Visual Impairments (NAPVI)

a/k/a: NAPVI

Address

P.O. Box 317
Watertown, MA 02272-0317

Phone

617-972-7441

Fax

617-972-7444

800 Number

800-562-6265

TDD

--

Email Address

napvi@perkins.org

Website

http://www.napvi.org

The National Association for Parents of Children with Visual Impairments, Inc., (NAPVI), is a voluntary, non-profit organization dedicated to providing support to the parents of children with visual impairments. The association enables parents to find information and resources for their blind or visually impaired child; helps parents to address the unique needs of visually impaired children who have additional disabilities; and provides parents with leadership, support, and training that enables them to help their children reach their fullest potential. The association also promotes outreach and networking programs; advocates the educational needs and welfare of affected children; and provides referrals to needed services. In addition, the association promotes the development of state and local organizations by and for parents of visually impaired children, and fosters communication and coordination of services among federal, state, and local agencies.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.