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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

XLP Research Trust

a/k/a: XLPRT

Address

60 Winchester Road
Romsey
Hampshire, SO51 8JA
United Kingdom

Phone

440-179-4521077

Email Address

info@xlpresearchtrust.org

Website

http://www.xlpresearchtrust.org

The XLP Research Trust exists to promote and fund research on this disorder, provide a point of contact and support for families affected by XLP, and raise awareness of the disorder among medical professionals and the public. X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan's syndrome, is an extremely rare, inherited immunodeficiency disorder that is usually fully expressed in males only. To date, more than 400 boys from 100 families have been diagnosed. Boys who have this disease have a faulty immune system and are unable to fight off infections, leading to chronic, life-threatening illness in many cases.

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