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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Fight SMA/Spinal Muscular Atrophy

a/k/a: FSMA

Address

1321 Duke Street
Suite 104
Alexandria, VA 22314

Phone

703-299-1144

Email Address

CarolineGibson@fightsma.com

Chapters

19

Website

http://www.fightsma.org

The Fight SMA/Spinal Muscular Atrophy is an international, non-profit organization dedicated to accelerating a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two. Spinal muscular atrophy that is caused by a deletion of the SMN gene on chromosome 5 is an inherited progressive neuromuscular disorder characterized by degeneration of groups of nerve cells (motor nuclei) within the lowest region of the brain (lower brainstem) and certain motor neurons in the spinal cord (anterior horn cells). Typical symptoms are a slowly progressive muscle weakness and muscle wasting (atrophy).

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