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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

UCSF Fibrodysplasia Ossificans Progressiva Clinic

a/k/a: UCSF

Address

533 Parnassus Avenue
UC Hall U-504
San Francisco, CA 94143

Phone

415-476-7242

Fax

415-476-9976

800 Number

888-689-8273

Email Address

referral.center@ucsfmedctr.org

Website

http://www.ucsfbenioffchildrens.org/conditions/fibrodysplasia_ossificans_progressiva/index.html

The UCSF Medical Center and UCSF Benioff Children's Hospital are recognized as world leaders in health care, known for innovative medicine, advanced technology and compassionate care. As an academic medical center, they are unlike community hospitals in that they offer pioneering treatments not widely available elsewhere. At their specialized Fibrodysplasia Ossificans Progressiva (FOP) Clinic, experts in both pediatric and adult orthopedics, orthopedic surgery and rheumatology are among the few in the country who readily diagnose and treat FOP. In addition, researchers at UCSF are investigating the rate of misdiagnosis of FOP and the most common causes for misdiagnosis. FOP is a rare genetic disorder that causes soft tissues to transform permanently into bone. These bones grow abnormally in the muscles, tendons, ligaments and other connective tissues, forming bridges of extra bone across the joints. As a result, movement in the areas affected by FOP is greatly restricted and sometimes impossible.

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