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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Weaver Syndrome Network

a/k/a: WSN

Address

4357 153rd Avenue
SE
Belluvue, WA 98006
USA

Phone

425-747-5382

Fax

425-235-6225

800 Number

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TDD

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Email Address

dpmayer@msn.com

The Weaver Syndrome Network (WSN) is a voluntary advocacy organization dedicated to providing support and information to families and caregivers of individuals with Weaver syndrome. This is a rare disorder characterized by faster than normal physical growth and bone development, distinct facial abnormalities, and developmental delays. Established in 1995, as support for families with children having Weaver syndrome, the Weaver Syndrome Network is a grassroots organization committed to establishing a network for affected individuals and developing comprehensive information on treatment options. The group also makes recommendations for optimal education and physical and social development are also made by the group. The organization supports ongoing medical research to determine the underlying cause of Weaver syndrome.

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