You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Fanconi Hope

a/k/a: FH

Address

PO Box 905
Southsea
Hants, PO1 9JG
United Kingdom

Phone

440-845-2712811

Email Address

info@fanconihope.org

Website

http://www.fanconihope.org

The Fanconi Hope is a registered national charitable trust set up by parents of Fanconi anemia (FA) affected children and clinicians with an interest in FA. Fanconi anemia is a rare genetic disorder that affects young children leading to bone marrow failure and bone marrow transplantation, with a very high risk of leukemia and subsequent head & neck cancers. Fanconi Hope Charitable Trust’s mission includes supporting a UK Fanconi Anemia National Registry so as to ensure Fanconi anemia affected children and their families are kept track of and provided with the best care; promoting awareness and understanding of Fanconi anemia among affected families, the medical profession, and the general public; encouraging translational research which may directly benefit Fanconi anemia affected children and their families; encouraging research in the area of Fanconi anemia that may have benefit for the general public, e.g., in the treatment of cancers in general.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.