You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Williams Syndrome Association

a/k/a: WSA

Address

570 Kirts Boulevard
Suite 223
Troy, MI 48084-4156

Phone

248-244-2229

Fax

248-244-2230

800 Number

800-806-1871

TDD

--

Email Address

info@williams-syndrome.org

Chapters

11

Website

http://www.williams-syndrome.org

The Williams Syndrome Association (WSA) is a national, voluntary, non-profit organization dedicated to improving the lives of individuals with Williams syndrome, a rare congenital disorder characterized by heart and blood vessel abnormalities, developmental delays, characteristic facial features, and/or additional abnormalities. Established in 1983, the association is committed to locating affected individuals and their families, and disseminating current medical and educational information to families, professionals, and the public. In addition, it seeks to increase professional awareness of, and interest in, Williams syndrome and supports ongoing research into the educational, behavioral, social, and medical aspects of the disorder. The Williams Syndrome Association engages in patient and family advocacy; provides appropriate referrals including support groups; and holds annual regional conferences, social gatherings, and biennial conventions.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.