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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Fibrous Dysplasia Foundation, Inc.

a/k/a: FDF

Address

15 Browns Court SE
Washington, DC 20003

Phone

202-547-3288

Fax

202-546-2854

Email Address

info@fibrousdysplasia.org

Website

http://www.fibrousdysplasia.org

The Fibrous Dysplasia Foundation, Inc. (FDF) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and to promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright’s Syndrome (MAS), and related diseases, including Cherubism. Fibrous dysplasia is a term that refers to either a group of chronic conditions featuring cystic bone growth that may arise from abnormal bone development or to a disease of bone marrow characterized by benign cysts. Fibrous dysplasia is characterized by uneven growth, pain, brittleness, and deformity of the affected bones.

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