You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Rare Diseases Clinical Research Network

a/k/a: RDCRN

Address

University of South Florida, Pediatrics Epidemiology Center
3650 Spectrum Boulevard, Suite 100
Tampa, FL 33612

Phone

813-396-9501

Fax

813-910-5997

800 Number

866-533-9104

Email Address

RareDiseasesNetwork.org, RDCRN.org

Website

http://rarediseasesnetwork.epi.usf.edu/registry/

Rare Diseases Clinical Research Network (RDCRN) is a non-profit organization that is funded by the National Institutes of Health (NIH) and the Office for Rare Diseases Research (ORDR). Their goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging the develpment of new approaches to diagnosis, prevention, and treatment.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.