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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Liam's Land Organization, Inc

Address

P.O. Box 5715
Savannah, GA 31414
USA

Phone

912-661-3698

Email Address

info@liamsland.org

Website

www.liamsland.org

Liam's Land Organization is a non-profit 501(c)(3) group who's goal is to advance the research and identify possible causes of lymphatic malformation by establishing a patient registry and funding further genetic testing and clinical trials. Lymphatic malformations (LM's) are abnormal channels and cysts filled with clear lymphatic fluid. LM’s can cause macroglossia, and thickening of the tongue, which can block airway and cause speech/eating complications. Other complications include facial deformations and many patients require a tracheostomy to provide a patent airway and a feeding tube for nutrition. There are currently several types of treatments for LM’s, however, there is no one "best practice." Multiple surgeries and treatments are common.

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