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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Klippel-Feil Syndrome Alliance

a/k/a: KFSalliance or KFSA

Address

1312 Oak Ave., Unit 1
Evanston, IL 60201

Phone

734-244-4435

Email Address

info@KFSalliance.org

Website

http://www.KFSalliance.org

The Klippel-Feil Syndrome Alliance is a voluntary organization whose mission is to unite individuals across the globe who are affected by Klippel-Feil syndrome (KFS) with the scientists and health practitioners who study and treat them, and empower people to advocate for improved access to needed care, pain reduction, and higher quality of life. KFS is a rare skeletal disorder primarily characterized by abnormal union or fusion of two or more bones of the spinal column (vertebrae) within the neck (cervical vertebrae).

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