You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Epidermoid Brain Tumor Society

a/k/a: EBTS

Address

12573 Wedd St.
Overland Park, KS 66213

Phone

913-261-9662

Email Address

lindafrevert@yahoo.com

Website

http://www.epidermoidbraintumorsociety.org

The Epidermoid Brain Tumor Society (EBTS) is a 501(c)(3) organization that provides educational information and support to patients who seek treatment for an epidermoid brain tumor. Thiese types of tumors are rare, benign, and slow-growing. They can occur in any part of the brain, but generally are found in the lower cranial base, which is an anatomically challenging region for surgical removal. Epidermoid brain tumors may also be referred to as epidermoid cysts.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.