Patients, caregivers, advocates, doctors, researchers, legislators, regulators, and public figures. People who make a positive impact on the rare disease community go above and beyond, overcoming certain obstacles, to help make meaningful change in the lives of others. They are making a rare impact.
NORD will be requesting nominations of individuals that have made a positive impact on the rare disease community in 2016. Eligible Nominees include patients, caregivers, advocates, physicians, medical experts, researchers, media, educators, legislators, regulators, and others and their efforts to raise awareness and make a difference through education, media/social media campaigns, policy work, and community-building. Special value will be placed on the Nominees that have made an impact on all rare diseases and rare diseases as a whole.
Nominations will be open for three months beginning October 14, 2016. Note: This is not a vote. Please do not nominate the same person more than once. *Required fields marked with asterisks*
-Drew's Hope, Kate Ferrandino
-Patient Advocate, Savannah Hollis
-CureDuchenne, Debra Miller
-Patient Advocate, Noah Victoria