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Rare Impact Awards

The Rare Impact Awards serves as NORD’s signature fundraising event in which it brings together the entire rare disease community to celebrate people and organizations who are making extraordinary contributions to help others. This event also serves as an opportunity to individually and collectively renew our commitment, energy, and focus to provide critical services to help the 30 million Americans with rare diseases. The Rare Impact Awards will be held on Thursday, May 18 at the Ronald Reagan Building and International Trade Center in Washington, D.C.
Registration is now open! CLICK HERE to Register.


Enter for the Chance to Win Two Free Tickets
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Enter for the chance to win two free VIP packages to the 2017 Rare Impact Awards! Winners will receive the following as part of the VIP package:

  1. 2 Tickets for you and a friend to the Rare Impact Awards
  2. Premiere seating
  3. Invitation to an exclusive champagne reception before the event with honorees and special guests
  4. Photo opportunities with NORD President and CEO, Peter L. Saltonstall
*Please Note*
Winners of the VIP Package must enter by following the instructions that are outlined on the Facebook post here. Five winners will be chosen on Monday, April 3 and announced on NORD’s social media channels as well as through a private message to each winner. NORD is not responsible for travel and lodging to the Rare Impact Awards. Winners will only be provided what is outlined above and no exceptions will be made. The VIP package is not redeemable for a dollar amount.
"We had a wonderful time. We were inspired to continue our advocacy and research efforts on behalf of Batten Disease and NORD."

-Drew's Hope, Katie Ferrandino

"Amazing people and so many unbelievable stories of strength and triumph! I am thrilled to have been a part of it."

-Patient Advocate, Savannah Hollis

"Thank you so much! It was an honor to be amongst so many incredible people."

-CureDuchenne, Debra Miller

"The event was a life changing experience for me. Thank you again for giving me this honor. "

-Patient Advocate, Noah Victoria

Key Contacts

Event Details
NORD’s Event Team

Event Sponsorship
Derek Gavin