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2016 Rare Impact Awards

The 2016 Rare Impact Awards was hosted on May 17 at the Warner Theatre in Washington, D.C.  The rare disease community came together for a beautiful evening to celebrate progress in rare diseases. Honorees included patients, advocates, researchers, doctors, and industry innovators.

 

 

 

 

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2015 Portraits of Courage Celebration

The 2015 Portraits of Courage Celebration was hosted on May 15 at the National Building Museum in Washington, D.C. Industry leaders, physicians, patients, families and friends were surrounded by butterflies and the spring time colors of pastel blues and greens to symbolize the individuality of each of the honorees that evening. The theme spoke to the power and potential for one person to make a positive impact on the lives of others.

 

 

 

Watch the Event! 

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"We had a wonderful time. We were inspired to continue our advocacy and research efforts on behalf of Batten Disease and NORD."

-Drew's Hope, Katie Ferrandino

"Amazing people and so many unbelievable stories of strength and triumph! I am thrilled to have been a part of it."

-Patient Advocate, Savannah Hollis

"Thank you so much! It was an honor to be amongst so many incredible people. "

-CureDuchenne, Debra Miller

"The event was a life changing experience for me. Thank you again for giving me this honor. "

-Patient Advocate, Noah Victoria