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Project RDAC – Events


Rare Disease Advisory Council Stakeholders Meeting

December 16, 2020
2:30 PM-4:30 PMET

The National Organization for Rare Disorders (NORD) is excited to host the inaugural public meeting for Project RDAC on December 16 from 2:30p.m.-4:30p.m. ET. During this meeting, members of the rare disease community and interested stakeholders will be joined by members of the existing 14 councils and at least another 12 states that are actively pursuing legislation to enact a Rare Disease Advisory Council (RDAC). There will also be a panel entitled, “Early Successes and Challenges of Rare Disease Advisory Councils,” that will highlight state RDAC work. After the panel, there will be various breakout sessions to enable networking, provide additional opportunities to learn more about existing RDACs that can guide future efforts to introduce and pass new RDAC legislation into law across the country.

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