May. 23, 2016
TOPIC:
Events, Get Involved, Patients & Members, Research
Posted by Christina Jensen
The Undiagnosed Diseases Network (UDN) brings together clinical and research experts from across the country to try to solve the most challenging medical mysteries. As part of this project, patients with longstanding, unexplained symptoms can apply to receive an in-depth clinical and research evaluation at one of the UDN’s seven medical centers.
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Learn more about the UDN
Friday, June 3
1:00 p.m. EDT
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Webinar Speakers:
Katria Dipple, MD, PhD: Principal Investigator at the UDN‘s UCLA clinical site
Erica Hines: UDN Participant at Duke University Medical Center
Vandana Shashi, MD, MB BS: Principal Investigator at the UDN‘s Duke clinical site
Kimberly Splinter, MS, CGC: Genetic Counselor & Clinical Project Manager for the UDN
Webinar Topics:
- Overview on the UDN
- Application and evaluation process
- Financial considerations
- Story of UDN participant, Erica Hines
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Clinicians, researchers, patients, and families interested in referring
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Tags: Duke University, National Institutes of Health, National Institutes of Health (NIH), National Institutes of Health (NIH) Undiagnosed Diseases Network (UDN), UCLA, UDN, Undiagnosed Diseases, Undiagnosed Diseases Network, Webinar
Thank you for your interest in the Undiagnosed Diseases Network. Your mother can read more about the study and access the online application here: https://undiagnosed.hms.harvard.edu/.
Hello, my mom has been sick for over 10years now. She has not been diagnosed with anything . Most of her test results come back fine yet she is extremely sick she can’t do any of the things she used to be able to do. She is always dizzy she feels like her body is on fire she has been in the hospital numerous times because she has tachycardia and it gets uncontrolled when she feels ill. They send her home still sick and without any answer please help my mother live a normal life again. Thank you for your time.
Thank you for your interest in the Undiagnosed Diseases Network. Your mother can read more about the study and access the online application here: https://undiagnosed.hms.harvard.edu/.
I have a tumor at s2. My pain is always an 8 but goes to 10. Doctors are being dismissive about this tumor causing my problems saying it doesn’t make a person hurt. I have constant burning pain, that eagles me up every two hours. I cannot walk or stand. Cannot hardly sit or lay down. Please help me. It hurts to ride in s car but I will if I can get help.