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Jul. 2, 2019

TOPIC: Advocacy, Events, Featured News, Get Involved, Industry, Medical, Patients & Members

Registration Open for 2019 NORD Rare Summit

Posted by Lisa Sencen

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with rare diseases. The 2019 NORD Rare Summit will bring rare disease leaders together for conversations that will put us on the right path towards making that happen.

Download our sneak-peek agenda and register to be a part of this critical conversation.


Poster abstract submissions now accepted!

The NORD Rare Summit poster exhibit continues to grow year after year with close to 100 posters on display to 800+ attendees in 2018. Be a part of it in 2019 by submitting your poster abstract for review. The call for posters will close on Monday, August 2.
Download instructions here.