News NORD and Other Patient Advocacy Groups Issue Letter on Lack of Clear COVID-19 Vaccination Prioritization Guidance to the States for Rare Disease Patients
News Letter from NORD to Majority Leader Mitch McConnell and Minority Leader Chuck Schumer in support of Alex Azar’s candidacy
News Protecting Patients and Telehealth Access: Over 230 National Organizations Urge Governors Across the Country to Maintain and Expand Licensure Flexibilities Throughout Federal Public Health Emergency
Policy Statement NORD sends letter to Colorado Prescription Drug Affordability Board regarding Senate Bill 21-175
Policy Statement NORD Signs on to Letter Offering Recommendations for Patient Priorities for the 2026 Notice of Benefit and Payment Parameters
Policy Statement NORD Joins a Letter of Support on Innovation in Pediatric Drugs Act of 2023 (H.R. 6664)
Policy Statement NORD and the Medical Nutrition Equity Coalition sends letter to Senate leadership to include the MNEA in the end-of-year legislative package
Policy Statement NORD submits letter of support to the PA Majority Leader in support of Senate Bill 225 on step therapy reform
Policy Statement NORD sends letter with the All Copays Count Coalition to CMS to address copay accumulator adjustment policies in the 2024 Notice of Benefit and Payment Parameters
Policy Statement NORD and 109 organizations send letter to Senate Finance and House Energy and Commerce in support of the Accelerating Kids’ Access to Care Act
Policy Statement NORD and 24 organizations send letter to Governor Newsom urging the passage of SB 912
Policy Statement NORD Leads Nearly 200 Patient Organizations in a Letter of Support to House Leadership for Rare Pediatric PRV Reauthorization
Policy Statement NORD Issues Letter of Support for Rhode Island S2611/H7822 Regarding Step Therapy Protocols
Policy Statement NORD submits letter in support of CT S.B. No. 206, concerning the expansion of the Katie Beckett Waiver program
Policy Statement NORD joins patient organizations in sending a letter to the House of Representatives regarding concerns about the detrimental impact of policies included in HR 2868, the Association Health Plans Act; HR 2813, the Self-Insurance Protection Act, and HR 3799, the CHOICE Arrangement Act
Policy Statement NORD and 78 patient organizations send letter to the HELP committee supporting the Retaining Access and Restoring Exclusivity (RARE) Act
Policy Statement NORD and 11 other patient organizations submit a letter to the IN House Committee on Public Health urging them to support HB 1201, Rare Disease Advisory Council legislation
Policy Statement NORD and 38 other patient organizations submit a letter to the TX Senate Health and Human Services Committee urging them to support SB 1408, Rare Disease Advisory Council legislation
Policy Statement NORD and 15 organizations send letter to Senate Committee on Commerce and Labor urging the passage of SB 194
Policy Statement NORD Sends a Letter of Support for Indiana Senate Bill 43 – Establishes a Rare Disease Advisory Council
Policy Statement NORD and other patient advocacy groups sign letter showing their support of the Medicaid Program
