Search Results for: reports_by_letter.html

Policy Statement

NORD and other patient advocacy groups send letter to Congress asking to oppose the REINS Act

Policy Statement

NORD and other stakeholders send letter to Minnesota lawmakers encouraging them to support the expansion of biomarker testing

Policy Statement

NORD signs on to letter sent to Ohio House Insurance Committee supporting biomarker legislation

Policy Statement

NORD and 42 other organizations submit a letter of support encouraging CT lawmakers to support biomarker legislation

Policy Statement

NORD letter of thanks to Rep. Rob Nosse, sponsor of Oregon House Bill 2047, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD signs on to letter encouraging the expansion of New York’s 1332 Essential Plan

Policy Statement

NORD joins letter with 22 patient organizations asking Secretary Becerra to establish a National Directory of Healthcare Providers and Services

Policy Statement

NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package

Policy Statement

NORD Sends Letter of Support for HF 1501 to Fund Minnesota’s RDAC for FY2026 and FY2027

Policy Statement

NORD sends letter with 125 other patient organizations to ask Congressional leadership to reauthorize Title V programs and pass necessary reforms to benefit patients

Policy Statement

NORD joins leading patient organizations in letter to CMS urging the agency to protect patient access to Medicaid

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Letter to the Editor – Sample

Policy Statement

NORD and seven patient organizations send letter to Maine Department of Environmental Protection urging an amendment to include medically necessary products in the “Stewardship Program for Packaging Law”

Webpage

Policy Statement

NORD and the All Copays Count Coalition sends a letter of support regarding the U.S. District Court Decision on 2021 Notice of Benefit and Payment Parameters Final Rule

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Letter Templates for New Nonprofits for Board Members and Medical Advisors

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IRS Letter of Determination of 501(c)3 Status

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Letterhead

Policy Statement

NORD and 98 organizations send letter to Congressional leadership to resume negotiations to develop a comprehensive FDA user fee package

Policy Statement

NORD Issues Letter of Support for New Jersey A1825 Regarding Step Therapy Protocols

Policy Statement

NORD signs on to a letter to the House Appropriations Committee regarding USPSTF modernization and FY24 funding

Policy Statement

NORD signs on to a letter to the Senate Appropriations Committee regarding USPSTF modernization and FY24 funding

Policy Statement

NORD & 22 Patient Organizations Issue Letter of Support & Recommendations for MS RDAC Bills HB616/SB2156

Policy Statement

NORD joins 12 national patient advocacy organizations submit a letter to the Senate Finance Committee regarding the Modernizing & Ensuring PBM Accountability Act

Policy Statement

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Search Results for: reports_by_letter.html

NORD and other patient advocacy groups send letter to Congress asking to oppose the REINS Act

NORD and other stakeholders send letter to Minnesota lawmakers encouraging them to support the expansion of biomarker testing

NORD signs on to letter sent to Ohio House Insurance Committee supporting biomarker legislation

NORD and 42 other organizations submit a letter of support encouraging CT lawmakers to support biomarker legislation

NORD letter of thanks to Rep. Rob Nosse, sponsor of Oregon House Bill 2047, a bill to create a Rare Disease Advisory Council

NORD signs on to letter encouraging the expansion of New York’s 1332 Essential Plan

NORD joins letter with 22 patient organizations asking Secretary Becerra to establish a National Directory of Healthcare Providers and Services

NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package

NORD Sends Letter of Support for HF 1501 to Fund Minnesota’s RDAC for FY2026 and FY2027

NORD sends letter with 125 other patient organizations to ask Congressional leadership to reauthorize Title V programs and pass necessary reforms to benefit patients

NORD joins leading patient organizations in letter to CMS urging the agency to protect patient access to Medicaid

Letter to the Editor – Sample

NORD and seven patient organizations send letter to Maine Department of Environmental Protection urging an amendment to include medically necessary products in the “Stewardship Program for Packaging Law”

Newsletter

NORD and the All Copays Count Coalition sends a letter of support regarding the U.S. District Court Decision on 2021 Notice of Benefit and Payment Parameters Final Rule

Letter Templates for New Nonprofits for Board Members and Medical Advisors

IRS Letter of Determination of 501(c)3 Status

Letterhead

NORD and 98 organizations send letter to Congressional leadership to resume negotiations to develop a comprehensive FDA user fee package

NORD Issues Letter of Support for New Jersey A1825 Regarding Step Therapy Protocols

NORD signs on to a letter to the House Appropriations Committee regarding USPSTF modernization and FY24 funding

NORD signs on to a letter to the Senate Appropriations Committee regarding USPSTF modernization and FY24 funding

NORD & 22 Patient Organizations Issue Letter of Support & Recommendations for MS RDAC Bills HB616/SB2156

NORD joins 12 national patient advocacy organizations submit a letter to the Senate Finance Committee regarding the Modernizing & Ensuring PBM Accountability Act

NORD Sends a Letter of Support for S.B. No. 175, An Act Concerning Funds for the CT RDAC

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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