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National Organization for Rare Disorders (NORD) Names Pamela K. Gavin as CEO; Peter L. Saltonstall Retires and Will Serve in Consultative Role

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NNPDF Family Support and Medical Conference

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Guest Blog: Uniting for Behçet’s Disease Awareness on May 20

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2026 NORD Rare Diseases & Orphan Products Breakthrough Summit

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National Organization for Rare Disorders Adds Seven Rare Disease Centers of Excellence Nationwide

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National Organization for Rare Disorders Announces New Board Members

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Rare Faces of Medicaid: What’s at Stake for the Rare Community?

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NORD CEO Statement: Navigating Proposed Policy Changes and Their Impact on Rare Disease Advocacy

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The Gorlin Syndrome Alliance and NORD Launch Natural History Study for Gorlin Syndrome

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Volunteer Spotlight: Dr. Kristen Kingzett

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NORD Announces Four Patient Organizations to Join the IAMRARE Community and Submit Data to RDCA-DAP

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Rare Voices: NORD and the Galactosemia Foundation Host Groundbreaking Meeting with FDA

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Living With Trichotillomania: Pageant Queen Sarah Pennington

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Season Finale: The FDA’s Dr. Kathleen Donohue and RDCA- DAP

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The Patient Experience: Philip Bright

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Scleroderma and Horses: Whitney’s Rare Disease Day Story

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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

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Wall Street Journal Publishes NORD Letter to the Editor

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Orphan Drugs Represent 41 Percent of All New Medications

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A Message from Our President and CEO

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FDA Commissioner Dr. Robert Califf Delivers Keynote Address at NORD Summit

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Rare Diseases & Orphan Products Breakthrough Summit Speakers

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NORD Responds to AHIP Report on Orphan Drug Act

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NORD Appoints Genetics and Metabolic Specialist Marshall L. Summar M.D. as Chairman of the Board

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NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)