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October 17-18, 2016

Summit Venue and Hotel Information

Hyatt Regency Crystal City
2799 Jefferson Davis Hwy
Arlington, VA 22202

*Please Note*: The NORD Room Block at the Hyatt Regency Crystal City has SOLD OUT. 
Nearby hotels that are showing availability include:

Courtyard by Marriott Crystal City
2899 Jefferson Davis Hwy
Arlington, VA 22202

Hilton Crystal City
2399 Jefferson Davis Hwy
Arlington, VA 22202

PLEASE NOTE: All hotel reservations for this conference should be booked directly with the hotel.  We do not use Housing Bureaus and none are authorized to call on our behalf.





Conference Pricing

Advantage Rate Register by: 8/26/2016 Standard Rate Register by: 10/17/2016 Onsite Rate Register Onsite
Industry (Pharma, Service Providers, Co-Pay Foundations) $2099 $2399 $2499
NORD Corporate Council Members $1699 $2099 $2199
NORD Patient Organization Members $349 $649 $749
Non-Profits/Patients/Academics $399 $699 $799
Government $499 $499 $599

Fee includes continental breakfast, lunch, wine & cheese reception, refreshments and conference documentation. Please make checks (in U.S. funds drawn on a U.S. bank) payable to: CBI  (No personal checks accepted.)

NORD is pleased to provide patient organizations with scholarships that will help with the cost of attending the Summit. Scholarships will be awarded on
a first-come, first-serve, as-needed basis with priority given to NORD member organizations. 


Poster Sessions
Abstracts Due: August 19, 2016



Researchers, whether they be students or professionals, interested in presenting their rare disease research to a large and diverse audience are encouraged to submit poster abstracts for the NORD Summit.  The theme for poster sessions at the summit will be “Life-Transforming Treatments” with four topic areas that researchers can focus on. More information and an application is available here.

Abstracts Due: Friday, August 19



Individual Patient/Caregiver Registration Scholarships
Applications due: September 9, 2016



Download the application here.
Individual scholarship recipients will be awarded with waived registration only (a value of $300). Travel and lodging not included (i.e. mileage, taxi, train, flight and hotel). Only applications received by the deadline (September 9, 2016) will be considered eligible. All applicants will be notified on September 16, 2016 and recipients will have 48 hours to confirm their attendance. Any unconfirmed awards are subject to be withdrawn.
Contact Kristen Angell at for additional information.
Send your completed application to


Patient Organization Scholarships
Applications due: July 15, 2016



*The deadline for this scholarship has passed. Please contact Kristen Angell with any questions.*
Download the scholarship application here.
Contact Kristen Angell at for additional information.
Send your completed application to

*please note-applications should be downloaded onto your computer and opened
with Adobe Acrobat. When saving the document, be sure to “Save As” before sending the completed application.*


3 Ways to Register

Substitution & Cancellation

Any cancellations received in writing on or before 14 days prior to the start date of the event will be refunded, less a $399 administrative charge.  No refunds will be made after this date.  Your registration may be transferred to another member of your organization up to 24 hours in advance of the summit.

NORD and CBI will offer a credit to those who cancel prior to the cut-off date to an alternative conference hosted by CBI within a six-month timeframe.  In case of a conference cancellation, you will receive a refund for your conference registration fee only.  NORD reserves the right to alter this program without prior notice.  Please Note: Speakers and agenda are subject to change.  In the event of a speaker cancellation, every effort to find a suitable replacement will be made.

Satisfaction Guaranteed

NORD stands behind the quality of its events, as does CBI for its conferences.  If you are not satisfied with the quality of this event, a credit will be awarded towards a comparable conference hosted by CBI of your choice.  Please contact (800) 817-8601 for further information.

*The opinions of the conference faculty do not necessarily reflect those of the companies they represent, NORD or CBI.